NARCOLEPSY: I haz it.
What it’s like to be a 21 year old college student with Narcolepsy! Just getting over a cold.. my voice is raspy.
NARCOLEPSY: I haz it.
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did u fell asleep , while u were uploading the video?
Hi, just found out I had Narcolepsy last week and have been googling it and came across your videos… You remind me so much of myself it’s not even funny!!
Anyways….. Everyone incuding myself had always put it down to excessive laziness! But now I know I actually have something wrong and something can be done to help me get out of my damn bed, i’m actually kinda happy?! Altho I definitely agree, it is soooo fricken lame!! Just waiting for my script to be approved so, happy days! I hope?!
I kinda wish i had narcolepsy.. it would give me a release from all this stress. i have lots of anxiety disorders and currently i can’t even leave my house.. the anxiety gives me insomnia and then on top of that i’m taking Nuvigil…which is for narcolepsy so i’ve been getting like 2-3 hours of sleep… :(
@MrDigsIt people tell me to just try to exercise all the time, but i’ll go to the gym for 5 minutes before i start yawning and have to drive home (dangerous in itself) to sleep! if i even make it home! terrible that you’ve banged your head… so scary!! adderall didn’t work very well for me, but i was doing a combo of 250 nuvigil, with up to 30 dextroamphetamine, plus lots of coffee–and same, it only keeps it at bay for a few hours… sigh! you’re not alone.
@mcfinney so glad you found me though NN! and i totally agree with what you say about the frustrating things people say! it’s so annoying, and it’s so good to know other people have to deal with that too!
@FlopsyDiggins i can swim! i’m not very good at it, but i swim. sunshine makes me sleepy sometimes, so i usually give up after swimming for a little to go take a nap.
@REORachel totally agree with you! doctors thought it was all kinda random things before they found out it was narcolepsy for me. i’m glad that you never gave up searching for the answer and finally got one!
@kidbeneveds1 aww i’m sorry to hear that! the sleep study was soo annoying. my fastest time falling asleep i think was 2 minutes, but i didn’t even think i was asleep when they woke me up! it does suck to have to take meds forever, but as best you can try to regulate your eating, sleeping, exercising habits, etc., and maintain a structured lifestyle with as much consistency as possible–it helps me!
I’m almost 16. I found out I was narcoleptic a couple of months ago.
I hated the sleep study! I had to stay over night, and take the twenty minute naps. I fell asleep every time,even if I was awake and didn’t want to go lay down.
The fastest I fell asleep was right at 4 mins. It was 1 of the last times I had to do it, and I didn’t want to take a nap.
I’m glad to know what I have so I can take medicine to keep me awake, but it sucks knowing I have to take meds for the rest of my life.
I have narcolepsy, 37 female, we just discovered it. Thank you for sharing your story. I was tired and sleeping all the time for 3 years. My doctor thought it was just stress. If anyone out there thinks they might have this too get a study! Don’t give up, find an answer.
you talk to much…… but look great in dark hair…
how many times did you fall asleep during the making of this video?
you are very prety :)
Ur beautiful do you have a facebook??
@putonyourhat Are you allowed to swim?
I saw you on the Narcolepsy Network boards and found my way to this vid - awesome stuff. I’ve been diagnosed since my senior year of college, so 6 years I guess. You totally hit the nail on the head - so frustrating when everyone’s like - yah i’m really tired too. Or when they tell me it’s my fault because i don’t go to bed early enough (doesn’t matter!) or when I get shit for not having the energy to go out at night. It’s nice to hear from someone who can relate!
I have 2 major problems besides the Narcolepsy its self. I do not have one friend or relative that understands what I go through in the least. My son in law keeps telling me that when I feel it coming on to go take a walk!!! I banged my head on this oak desk 5 times a row the other day. I don’t have the sense to move enough to stop it but I can go “take a walk” Also I take 60mgs of Adderall, 250 Nuvigil, 1 5hr energy and sip on a mountain dew. That will keep the attacks at bay for 3 or 4 hrs
I feel ya….
You pretty much explained me. When I was doing the sleep study I had 2 really crazy hallucinations. One of them I was laying on the bed and I had some CDs a brought with me. I really wanted to listen to some music, so I looked around the room and there was a boom box. Then I thought to myself “I’ll listen to some music when I wake up”… I woke up and looked over where the boom box was. Nothing. Then during another nap I started spinning down a light tunnel from my room… It was so vivid….
LOL I love this video it’s funny. I’ve had it for about…2 1/2 years..it sucks…I fell into REM sleep all five tests within a minute….and then I didn’t wanna get up I was mad LOL
what about when you are in the pool or sea??
you are so pretty :)
i just had a sleep study. I was falling asleep at red lights, in meetings at work - within 30 seconds of me “focusing” on something i was out cold. I would then wake up with a myclonic, or hypnic jerk - which would push things off my desk, honk the horn on the car, etc. I would do this…15 times a day minimum.
I’m waiting on results of sleep study (did it last week) — my guess is CPAP but we’ll see.
would you fall sleep having sex?
i dont think i should sat this it might offend you but your funny